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ProgenyHealth Charitable Fund Privacy Notice 

Last Updated July 2025 

1. Overview 

ProgenyHealth Charitable Fund (collectively “PHCF”) prepared this Online Privacy Statement (“Privacy Notice”) to explain how PHCF collects, uses and protects Personal Information (defined below) using ethical and responsible practices that respect your privacy, and as required by law. 

This Online Privacy Statement (this “Privacy Statement”) applies to Personal Information collected on our websites, mobile applications, or cloud-based services and communication platforms with a link to this Privacy Statement (collectively, the “Site”). It covers how we collect, use, share, and otherwise process Personal Information as of the date that this Privacy Statement is posted. It does not apply to any other information collected by us through any other means. By “Personal Information,” we mean information that identifies or can identify you personally, including any information that identifies, relates to, describes, is capable of being associated with, or could reasonably be linked, directly or indirectly, with a particular individual or its equivalent. 

2. Collection of Information 

For public areas of our Site, we generally collect and process only Personal Information you voluntarily provide to us. We also collect your Personal Information to perform services on our Site, enhance the services we offer you, maintain and improve the Site, to secure you and our Site, comply with legal obligations, and inform you about other services and products that may be available through us, our affiliated companies, and our marketing partners. 

If you choose not to provide us with the Personal Information that we legitimately require, we may be unable to provide you with the information or services you have requested. Public areas of our Sites ask for Personal Information from you when you engage in the following activities: 

  1. Donate 
  2. Submit comments, reviews, or other user generated content 
  3. Sign up for newsletters or general information about our products and services 
  4. Prevent fraud and allow for a safer experience 
  5. Request customer or technical support 

Personal Information may include any or all of the following: 

  1. Name; 
  2. Postal or billing address; 
  3. E-mail address; 
  4. Telephone or mobile number; 
  5. Location via IP address; 
  6. Device being used (for our mobile site); 
  7. Other relevant data, including any information you provide when contacting us. 

Even if you do not send us any Personal Information, we may collect certain non-personal information about how you use our Site. This non-personal information cannot reasonably identify you and is used for statistical purposes. 

3. How We Use and Share Your Personal Information 

Whatever the purpose may be – whether we share with service providers, consultants, government authorities, or other external entities – we only process and share your Personal Information to the extent reasonably necessary to fulfill your requests and meet our legitimate business and legal objectives. We do not share your Personal Information with unaffiliated third parties solely for their own direct marketing purposes. We do not sell your Personal Information. When we disclose Personal Information to external entities to perform support services for us, we establish by contract that they may access your Personal Information only for the purposes of performing those support services. We may combine your online information with information collected from offline or online sources, or information we already have. 

We will use your information to provide certain services and to comply with regulatory or legal requirements imposed on us in each jurisdiction in which we operate. We may monitor or record any communications with one of our employees, including telephone calls and emails. We may use these recordings to check instructions to us, assess and improve our services, and for overall training and quality purposes. The information may also be used to invite you to events and be shared with partner companies that provide marketing services to us at our request and under our direction. 

Business Activities. We generally process and may disclose your Personal Information to others to: 

Authorized Service Providers. We use other companies and individuals to perform certain functions on our behalf. We may disclose certain Personal Information to these companies and other individuals performing services in the United States. 

Sale of the Businesses. If we sell all or part of our business, Personal Information may be transferred to the purchaser in connection with that transaction. We will use reasonable efforts to include contractual provisions that require the purchaser to treat your Personal Information consistent with the terms of this Privacy Notice.

Other Disclosures. We may otherwise disclose Personal Information as permitted or required by law, when we believe in good faith it is necessary for safety purposes, required for legal reporting, or to protect our legal rights or enforce our Site’s terms and conditions or any applicable rules, or to protect the rights of others. We may also disclose Personal Information to our auditors, legal advisors, or to respond to a subpoena. We may also aggregate information that we gather about you (e.g., traffic patterns) and provide these statistics to others in aggregate form. 

Any access to your Personal Information is restricted to those individuals who have a need to receive or access this data in order to fulfill their job responsibilities. We may also disclose your Personal Information as required or permitted by applicable law to governmental authorities, courts, external advisors, and similar third parties. 

4. What Are Your Rights Concerning Your Personal Information 

Certain jurisdictions maintain local data protection regulations that confer certain data protection rights on individuals. We will address those rights as required by applicable laws. If you wish to exercise any of these rights, please contact us as specified in the “How to contact us” section below. 

5. Cookies and Other Tracking Technologies

In accordance with applicable law, we use and allow third parties to use essential and non-essential cookies, online tracking tools, web beacons, and similar technologies (collectively, “cookies”) on our Site. We process this information to help our Site function correctly and better understand the needs of our visitors. 

Cookies on our Site generally fall into the following categories: 

Controlling Our Tracking Tools. Your browser may give you the ability to control cookies. How you do so, however, depends on your browser and the type of cookie. Certain browsers or browser plugins can be set to reject all browser cookies. If you configure your computer to block all cookies, you may disrupt certain web page features and limit the functionality we can provide when you visit or use our Site. (e.g., we will not be able to provide you with searches that you have asked us to save). You can change your cookie settings at any time.

Some browsers have a “Do Not Track” feature that lets you tell websites that you do not want to have your online activities tracked. These browser features are still not uniform, so we are not currently set up to respond to those signals. 

6. Security 

We implement a variety of technical, physical, and administrative security measures to secure the confidentiality of your Personal Information and to protect it from loss, misuse, alteration, and destruction. Those measures include a variety of practices to keep Personal Information safe and prevent unauthorized access to, or use, or disclosure of it. And while we strive to protect your Personal Information, we cannot guarantee or warrant the security of any information you transmit to us, or to or from our Services. You transmit all such information at your own risk. We are not responsible for circumvention of any privacy settings or security measures contained on the Site. 

7. Data Retention 

Depending on the product or service, we will retain your Personal Information only for the period necessary to fulfill the purposes outlined in this Privacy Notice, unless a longer retention period is required or permitted by a law that applies to us. 

8. Minors 

This Site is not intended or directed to individuals under the age of 16, and we do not knowingly collect any Personal Information from minors, or knowingly track the use of our Site by children. If you believe we have impermissibly collected Personal Information from someone under the age of 16, please contact us directly. 

9. How can you contact us to update your Personal Information, file a complaint, ask questions, or send us comments about this Privacy Notice? 

If you have any questions or concerns about this Privacy Notice or wish to correct or update your Personal Information, or alert us about a concern or unsubscribe from any updates you have requested, call or email us at: 

ProgenyHealth Charitable Fund: 
Email: info@progenyhealthcharitablefund.org 
Phone: (484) 272-9915 

10. Changes or Updates to this Privacy Notice 

We may amend this Privacy Notice at any time. If we make any material change in how we collect, use, disclose, or otherwise process Personal Information, we will prominently post an updated Privacy Notice on our Site. Any changes to this Privacy Notice will be effective immediately upon posting of the updated Privacy Notice or as otherwise required by applicable law.